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ROSI – Advice and support for patients and families
When preparing for dying, death and grief, you can begin by thinking about what’s important to you. Find below a list of thoughts that others have found helpful and linked resources as a starting point.
Don’t lose sight of yourself – With so many changes, it can be easy to lose sight of what makes you feel like yourself and what you enjoy doing. It may just be doing something special with your family and friends or something you have always wanted to do, but haven’t had the chance.
Your journey – the decisions you make about your care are yours. Speaking with your family, friends or those supporting you may help them understand your decisions. Do what’s right for you.
Circles of Support (App guidance)
It’s never too early to talk – talk to people about your wishes as soon as you can. Many people report that having their wishes known made them feel calmer and more in control. See some ideas here about how to start a conversation.
Make notes – keep a notebook of questions as they come to you. That way, when you meet with someone, you’ll have it all to hand. Anything urgent contact your healthcare professional directly.
Medical needs – when talking about your illness or condition, make sure to describe your worst days as well as your best to help the people involved in your care understand how things are affecting you day to day.
Finances – accessing benefits for the first time can be worrying. However, it’s important to find out what you are entitled to. See links here:
Equipment – think about what you might need in the future, as sometimes it takes time to get the equipment you need. Local community nurse have put together a list (webpage / pdf) you might find useful.