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St Nicholas Hospice Care Privacy Policy

Who we are:

St Nicholas Hospice Care is a local charity providing help, advice and support to people in West Suffolk and Thetford in the final chapters of their life, who are living with long-term and life-threatening illnesses.

Our services are not just for patients, but for their family and friends too. They include everything from specialist medical care to bereavement support and practical help.

We also:

• Offer emotional support to patients, children, families and carers

• Help people to make the most of every day

• Advise on pain relief and other symptoms

• Liaise with other services which may be able to help

• Offer a variety of education to local professionals and carers

• For staff/volunteers

• For patients

Terms and definitions

The General Data Protection Regulation (GDPR) defines the laws governing the protection of personal identifiable information (PII), throughout this privacy notice we may use words such as data and information in reference to PII.

When we draw specific attention to ‘sensitive information’ we are referring to the types of information highlighted by the law as requiring additional protection and consideration when processing. An example would be information relating to health and medical needs.

We also use the words process, share, record, use, collect and store to describe the handling of personally identifiable information.

Why your personal information is so important

St Nicholas Hospice Care is obliged to protect the privacy rights of all individuals. This means when a person chooses to share their information with us, we strive to keep it safe with strong security measures.

It is the responsibility of the Hospice’s staff and volunteers to protect against unauthorised processing of information and against accidental loss, destruction and damage. We ask any third party organisation that processes data on our behalf to match and demonstrate the same high standards. Contractors must comply with the law, as well as our data security and confidentiality procedures and must sign a binding agreement.

What are your rights?

The rights of everyone protected by law:
• The right to be informed about the processing of your personal information
• The right to have your personal information corrected if it is inaccurate and to have incomplete personal information completed
• The right to object to the processing of your personal information
• The right to restrict the processing of your personal information
• The right to have your personal information erased (the ‘right to be forgotten’)
• The right to request access to your personal information and to obtain information about how we process it
• The right to move, copy or transfer your personal information (‘data portability’)
• Rights in relation to automated decision making which has a legal effect or otherwise significantly affects you

What is our legal basis for processing your personal information?

Processing of your personal information is necessary for the purposes of carrying out our obligations as a health care provider is necessary for reasons of substantial public interest, on the basis of Union or Member State law which shall be proportionate to the aim pursued, respect the essence of the right to data protection and provide for suitable and specific measures to safeguard the fundamental rights and the interests of the data subject.

We do not require explicit consent of members to process their personal data if the purpose falls within the legal basis of GDPR.

Why information is collected from those we support

• To safely care for the people using Hospice services

• To show the Hospice’s impact to regulators and grant funders

• To develop insights on the quality and effectiveness of our services

How long do we hold your data for?

Information is retained in line with the NHS Records Management Code of Practice 2016 which you can read about on the NHS Digital Website. https://digital.nhs.uk/data-and-information/looking-after-information/data-security-and-information-governance/codes-of-practice-for-handling-information-in-health-and-care/records-management-code-of-practice-for-health-and-social-care-2016